Three Little Engines: Allergies

Sunday, June 1, 2008

Allergies

We found out yesterday that Aidan is allergic to cut grass. He helped Daddy mow the lawn, (I should have gotten photos of that!!!) came in sniffing like crazy, and less than 10 minutes later I found him in the laundry room, asleep, next to the dryer and back door. It was only 10am. Poor little dude. I know how he feels. I guess he won't be mowing the lawn again anytime soon.

1 comment:

Erin said...: oooo.. that's the kind of allergies that my kids need! The kind where they just drop and take a nap!; June 1, 2008 at 1:25 PM

Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.