Three Little Engines: Oreos, corn, and lettuce

Sunday, June 22, 2008

Oreos, corn, and lettuce

We have several corn sprouts popping through.

And I believe this is really lettuce. What's popping through in the potato area, I'm not completely convinced isn't weeds, so I didn't take photos of it. I'll wait until I know for sure! :)

Aidan, entertaining Jacen with Oreos.

I love our Squeaker's laugh.

My belly looks enormous here. Sitting down does that, but I do poke out quite a bit. Everyone always insisted I had to be having twins when I was pregnant with Aidan and Jacen. This time they just keep expecting me to say that I'm due anytime now, instead of in November!

(I can't even have a kitchen table free of Lincoln's auto items! Darn jump-box!)

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Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.