The whole time Daddy and Damon were at Primary Children's for his test, people kept telling him Damon "looks just like you!" They do look the most alike right now.
We do have both Damon's metabolic and genetic testing back, as well as Jacen's EEG and 2nd Sleep Study.
Damon's blood work (not all genetic and metabolic testing was done, just the basics to start with) shows a general outlook of normal, but there were several markers of abnormal that showed up relating to kidney and heart dysfunction. (Remember the fluid around his heart, liver, and abdominal wall that prompted the early induction?) Since we just did the Video EEG, the follow up with his neurologist has not been scheduled yet. So that still leaves many questions. And the possibility of a totally different direction being added to the mix.
Jacen's results showed he still has sleep apnea, but that it's now considered mild. So the surgery obviously helped him tremendously, but we still have to look at some other options and do more testing to find out why he's still having obstructions. They believe that it doesn't involve seizures, although they did note he did a lot of jerking.
Still waiting on Aidan's basic genetic and metabolic tests.
1 comment:
You sweet one- you guys are and have been through SO much, your boys are so darling. I wish I had a crystal ball and I wish I could make it better- I love you for the wonderful girl you are. Your an excellent mom. Hang in there, I am here for ya.
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