I followed up with Aidan's pediatrician as soon as he was back from vacation.
One of the things I'm grateful for with this doctor is that he doesn't treat me like I'm an idiot just because I'm the mom and don't have the title of physician. He knows I know my boys.
The other thing I'm particularly grateful for with him, is he really cares about Aidan, takes his condition seriously, and really looks at him closely. He was so thrilled Aidan was walking around and being silly in his office. And he kept telling Aidan, "You are such a good boy!"
He gave me lots of homework though... every appt with him results in a lot of homework. But in our case, that means he's a really good doctor. I'm supposed to get Aidan's MG to write a care letter for Aidan so that I don't have to argue with doctors anymore. It's a letter that outlines what medical care should be given even when Aidan gets a simple cold, or worse, what tests to run, what to put in the IV, what sorts of medications (and in what form) to add, etc. The second thing, I need to ask if a permanent port would be appropriate for Aidan. It's a port surgically put in his chest, so that an ER tech doesn't have to keep poking his arm for the needed IVs. We were very lucky this last time for that... those 5 IVs were administered through the original port they put in his arm. In the past, they'd gone bad and had to redo them. This would eliminate that. But there are obvious risks that would have to be weighed. The third, I have to watch him closely (which is kind of funny if you think about it) the next little bit, because it sounds like he was fighting off an infection... like a kidney infection. Now when I said, "well they kept throwing the fact his white blood cell count was normal in my face." He quickly replied, "those tests lie."
I left the pediatrician's office with some weight lifted, and some new hope. He gets it, and he cares.
The other thing I'm particularly grateful for with him, is he really cares about Aidan, takes his condition seriously, and really looks at him closely. He was so thrilled Aidan was walking around and being silly in his office. And he kept telling Aidan, "You are such a good boy!"
He gave me lots of homework though... every appt with him results in a lot of homework. But in our case, that means he's a really good doctor. I'm supposed to get Aidan's MG to write a care letter for Aidan so that I don't have to argue with doctors anymore. It's a letter that outlines what medical care should be given even when Aidan gets a simple cold, or worse, what tests to run, what to put in the IV, what sorts of medications (and in what form) to add, etc. The second thing, I need to ask if a permanent port would be appropriate for Aidan. It's a port surgically put in his chest, so that an ER tech doesn't have to keep poking his arm for the needed IVs. We were very lucky this last time for that... those 5 IVs were administered through the original port they put in his arm. In the past, they'd gone bad and had to redo them. This would eliminate that. But there are obvious risks that would have to be weighed. The third, I have to watch him closely (which is kind of funny if you think about it) the next little bit, because it sounds like he was fighting off an infection... like a kidney infection. Now when I said, "well they kept throwing the fact his white blood cell count was normal in my face." He quickly replied, "those tests lie."
2 comments:
So glad he's feeling better and especially glad that you have a doctor who is working as your ally in Aidan's care. I hope things are easier for you for a while. You deserve it!
YOU are such a TRUE ADVOCATE for your kids and I am sure that is another reason the Doctor has respect for you other then the fact of how could you resist not to care for your cute little guys- I am so glad you have a Dr, who really does listen and guide you.
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