Wednesday, February 2, 2011

That's more like it

So this is how an IEP mtg is supposed to be!
The very first IEP mtg for Aidan was fine.  It was for developmental preschool and there was no rush, no feeling like we couldn't do what Aidan needed.
But then the one for Kindergarten was totally different.
First, they were late.  Then, because they "had so many to get through" they had scheduled them in 30min blocks.  Well, when you're late, that cuts into an already too short time frame.
Then even though his preschool teachers recommended an absolute minimum of 60mins of daily special ed time, the kindergarten special ed who had never spent a minute with Aidan refused, and insisted on reducing it to 30mins only.  Not exactly a confidence builder of caring for your child's needs.
I'd expressed repeatedly my concern about his drop attacks and therefore safety not only in the classroom, but especially on the playground and busing areas.  I was told they would watch him closely.  Right.  One teacher and one maybe two aids keeping track of nearly 30 children.
I knew he could have an aid assigned for just him, but of course, no one was willing to offer that as a choice.  And though the service coordinator had promised me he'd be Aidan's advocate with it, (no longer have him) he completely dropped the ball and said something about a weighted vest instead... the least of my worries!

So when this new IEP through the online school was scheduled I was tied up in knots with worry.
And then it was so easy, and kind and considerate of Aidan's needs, and I was given all the choices, and asked several times if I was happy with the plan.  Wow.  Night and day difference!
Aidan's full psych eval came.  I'm grateful that it's pretty darn thorough.  It's very telling, and hard to read as his mother.  It hurts to see how everything that used to come so easily for him are such huge struggles now.
The list of disorders he's now diagnosed with was pretty staggering.
And it scares me for the future because it's going to get worse, not easier.
But it shows how the therapies and one on one schooling are truly helping him right now, so that gave me some hope, and validates it's all worth it.
When DT brought Jace to me they said, "We have no idea why his eye is swollen, he was fine, then when he took his sunglasses off, it was swollen."  No worries, the swelling went away as soon as the goop started coming out of his nose.  Poor little guy!  Stupid cold.  He loved posing with his sad face though.

No comments: