So I'm sure I've mentioned that Jace has symptoms that match seizures to a tee. But we have no eeg correlation to back it up. This is very difficult with partial seizures. Partial seizures often do not show up on eegs, even when it's really bad... depending on the neurologist too... some ignore the findings right in front of them and insist it's not there. Some admit it's there but refuse to put it in the report. Then there's those that admit and put it in the report, but all their colleagues insist they over-diagnose and "would put everyone on anti-seizure meds if allowed to." Let's just say it hasn't exactly fostered trust.
As I've gone through the whole thing with two neurologists already... reporting the symptoms, as they continue and get worse... I find myself feeling major deja vu again with the behavioralist.
This in no way is a gripe session about him. He's doing his best to help right now, I am not frustrated with him. The only other possible explanation for the mixture of symptoms Jace has is bi-polar disorder.
He's just barely 4yrs old. No one wants to label him with that.
And frankly, I don't even believe that's what it is.
Comparing the two, Jace's match seizures far more than matching bi-polar.
And familial history includes seizures, not bi-polar disorder.
And familial history includes seizures, not bi-polar disorder.
It has reached the point where it has to be treated. We can no longer wait around for someone to decide which disorder we are dealing with.
Jace starts Depakote in 2 weeks.
I pray it helps and doesn't muddy the water.
1 comment:
We're praying too. All of you need some relief and the right treatments.
Love you! Elle
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