Saturday, September 24, 2011

What?

What happened to my sort of schedule?
It got royally shook up, tossed up, and spun around.
What about school you ask?  Well, we got a tiny bit done.  This is the fault of both the tossed up schedule and the fact Aidan's partial seizures are even worse.  Before we could get school in the mornings without too much trouble, but now even in the mornings he's really struggling to see and speak correctly.  Having stomach muscle jerks isn't real helpful with school focus either.
How has his mood been?
Well, because it's seizure-en we are dealing with and no longer really Aidan...
wow we now have a bunch of angry, flipping out, obnoxious, even down right aggressive spikes coming from a normally angelic boy.
I think I hate partials more than whole brain seizures because they are so deceiving.  People have no idea, and think your child is just being a royal snot or really really weird.
That's not at all Aidan, so I hate for people to think it is him.  
Especially his own brothers.
Got the blood work done last night, now we have the hand x-ray to do today.  Hoping it will give good info for the endocrinologist.
As for the seizures, I'm praying by some miracle, that the partials will show on the eeg so we can get Aidan better help again.

1 comment:

Anonymous said...

So sorry to hear that Aidan's partial seizures are worse.
We're praying he gets the help he needs soon. He's an angel.

Love,
Elle