Updates

For at least a week, probably more, Aidan has struggled to not vomit.

I've done the "clean outs" 3 times in 6wks, in an effort to prevent this.

But this past weekend, he finally succumbed to the vomiting.  

We had 6 months run of him having relief from this very disruptive symptom.  As it returns, I'm frustrated.  Really frustrated.  We should have gone ahead and done the scope before.  His belly and chest look like a giant tomato with the rest of his body so skinny, small, and frail.  I want to scream at the drs "HELLO!  This isn't normal! DO something about it!"  But I have to keep my cool, because I need them to help.

Damon had more breakthrough seizures yesterday.  Huge body jolt, then screaming.  "Crying seizures," as Aidan calls them.  Therapy focused on his thumb sucking is starting soon.  One would think, hey he's only 2 what's the big deal?  I guess it's because it's a regression, and a pretty significant one.  They also want to do behavioral therapy for his screaming episodes.  I don't believe it's "behavior," but if in some way it helps him I'm willing.

Jace is super congested and his behavior is showing it. :/

But he did great for the neuro-psych testing, so that's over and I'm grateful.

Dentist appts next.  Ugh.  I really wish I could ignore these.