Damon, enjoying the ipad. We loaded some more educational games onto it after the speech therapist suggested them. Thank goodness most of them are free and the ones that aren't are still reasonable. I think their favorite of the new ones, if they had to pick, would be Bugs & Bubbles.
Only minor symptoms linger of the cold Jace was hit with, but his seizures didn't ever improve. Then his heaviest therapy day, Thursday happened. And we went through another spiral. It was awful.
What it really came down to- he did his absolute best for his PT, for 1/2hr at the most, and paid way too high a price for it. She did nothing wrong. It has always been difficult to get Jace to cooperate with PT. His yearly eval (wow it just hit me, exactly same thing happened with Aidan, exactly!) was up and she tested him. He cooperated. And had so many seizures afterward that we spent the entire remaining of the day running from one emergency with him to the next. Trying so hard not to let him fall.
Then Aidan had a drop seizure and hit his head on the gate next to his chair, and the floor. I couldn't believe how hard his head hit when he was only falling from a sitting position on the regular kitchen chair. You'd think nothing would surprise at this point.
Then no sleep again that night.
I couldn't stop my own body jolts either.
I managed a 10 min nap during their DT on Friday, (haha, it was more like an accident that I felt terribly guilty for) and then got away for a much needed 4hr break from the constant demands on Saturday. I felt lousy enough I wanted to cancel, but I didn't because my own head needed to clear.
Our boys aren't just young, they have huge needs, that they voice very loudly (not necessarily yelling- though that is part of it at times) but in ways most people don't ever experience. Like Jace's constant annoying (and loud) sound making. It's his way of dealing the huge sensory issues he has. But it also floods my head with input I can't handle. lol We literally annoy the bonkers out of each other. We love each other deeply too, of course, and that always trumps the rest. But when I've had that sort of overload with only very tiny times that are few and far between, of quiet, my mind is truly in chaos. Which brings on all sorts of negative things with my body.
Anyway, it was a very needed time out of my own.
Been praying for family. Life changing things going on right now, that are heartbreaking.
Praying they know how precious they are. Praying they realize God and Christ really do love them, perfectly, with tremendous mercy and gentleness. And for healing.
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