Aidan's- It's me, and a train track, and a ladder. :) I would say the first two are important to him, but the ladder has me baffled, so I guess I'm off completely.
Aidan's- a swing in the sun. He misses being outside and just being able to play like a kid.
Aidan's- a pirate ship scene.
Jace's.
Aidan's- Animals. Do you see the rooster? He said there's a giraffe too... I haven't found him yet.
Aidan's- reindeer.
This one involved more than one, so I can't say who's it really is.
Sun, a bird, and a tree... the tree was a dda worker. ;)
Jace's- a bashful owl.
Damon's.
Both Jace and Aidan have had really rough days. The med increase for Jace is helping him at night, but not during the day (dose was increased night only.) Jace's biggest enemy right now are the stupid complex partials... countless.
Aidan, not having a med increase, is spiraling with the jolts/myoclonics and complex partials. Again, countless. I wanted him to get out of the house and offered a wheelchair ride to take neighbor Christmas treats around. He insisted no. As I pressed with choices of how to make him comfortable, he broke out sobbing. Then said, "I just want... to be okay."
Of course this rips heart out, and floods my head with intense emotions regarding his care/lack of. And Jace's... he communicates less than Aidan.
So I pulled out the paint as a distraction. I think Aidan did benefit from it, and wish Jace had been more willing. He's usually really good at focusing on anything art. But not this day.
As the day progressed, I could see, more and more, we aren't alone and forgotten. Even what came in the mail that day was meant to lift.
As we left for shopping this morning, another bag had been left on our step. Damon is enjoying one of the gifts. :)
Not sure when Damon's big regression will hit, and wondering if the drs will be better prepared for it.
No comments:
Post a Comment