Thursday, June 27, 2013

June

June was a month filled with major things happening.
My amazing dad passed away.
The dramatic trip to his funeral ensued... the boys overheated repeatedly and even went into heatstroke, even with air conditioning, ice packs, water, misters, etc.  Not to mention, they just don't travel well... imagine sensory issues galore, nerve pains, and a big medicine box. :)

Jace lost his precious bear while there.  Of course that inspired a major search for a replacement.  That though he really liked, he still sobbed for, "the old one."
Damon's evaluations came in and all stated what we already knew... he's following the same medical path as his brothers.
His redesign plan was done and Jace and Aidan's were tweaked.
This was no easy task, and required SEVERAL people working to pull it off.  Long story short, one state agency took long enough to do their part, the other agency had to work super fast to make the deadlines.  Not to mention we had help with the boys and transportation that day.

My own AED was increased twice, helping me get through it all.  The first time it was doubled because Lincoln called and explained it was the only medication that was helping and asked if they'd be willing to increase it.  The second time because it really helped, but wasn't enough.

My foot continued to get worse... I don't think I mentioned that on here... I rushed to help Aidan in the living room.  Because the chair was in a different spot, I was trying to avoid bouncing off it.  I came too close to the couch and slammed my foot into it, most likely breaking it.

We've been having playdates with a neighbor and the boys are really enjoying it.  I do believe Damon has his first friend outside of his brothers or a worker.  He might even have a bit of a crush on her.  It's so precious to watch.  He shares with her without protest, and tries to protect her.  He'll walk up to her and give her a little push, she'll laugh and push him back. lol
I am blessed to have some mommy with another mommy time for once again.  It emphasizes to me how out of it I've been, and lack in conversation myself... I can talk to a therapist without even thinking, but to a neighbor, not so much.  It annoys me, because I'd really become a very social person before.  It shows how you really can lose those skills in isolation. lol

Lincoln's mangled finger continued to heal, but his mouth got worse and he had to go back for more dental work and again a third time for more antibiotics.  Really hoping that mess is done!!
He has been planting trees, painting back steps, and digging post holes again.
Aidan is terribly frustrated there is not work being done on the basement. :(

So as I turn 40, I'd like to recap with an eye of gratitude:
My dad is an amazing person and he leaves the best legacy possible- one of true love and charity.
We were able to go to his funeral and were kept safe and the boys eventually recovered.
My family is amazing and I love them.
My medicine is working so far.
We have awesome neighbors that care.
We made all the deadlines for the boys' services and Damon didn't lose any.


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