Three Little Engines: Homemade decorations part III

Friday, December 12, 2008

Homemade decorations part III

The end result.

And if you are wondering what on earth I did with those candy canes, I just wrapped the ribbon around twice to hang them. They ended up looking a little like chili peppers because of that really bright red. :) Oh well, no biggie. I left one tree just for the candy canes so later, we'll tell the boys the whole story about how candy canes came about.

P.S. There are some really cute/silly Christmas activity ideas on this site.

http://holidays.kaboose.com/xmas-party.html

1 comment:

Erin said...: I just said to myself, "Man, I haven't heard from Rachel or her blog in awhile, I need to email her". Then I checked your blog and you HAVE been blogging. I guess my google reader doesn't get your blogs anymore since you went private. Bummer. Oh well, now I am playing catch up!; December 15, 2008 at 5:29 AM

Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.