After the rash, the unusual bruising showed up. Including, right on Aidan's forehead and between his eyes. Poor guy! It's not as bad bruising as the ones on his legs though. Which is good, in a weird way.As for Aidan's diagnosis:
Epilepsy/Seizure Disorder (We already knew this, but what we didn't know until recently, he's having Petit/Absence Mal and Myoclonic Seizures that involve the whole brain... we'd been led to believe he was only having partial seizures.)
Abdominal Epilepsy (He's had these from the very beginning. Was misdiagnosed with AR.)
No Autism. He's "for one, too smart, and second, too social." I knew that already, but now the blasted doctors know it too. Aidan needs to be retested after the epilepsy is stabilized. He scored in the 99th percentile (scale is 1-99) in several things, but while seizuring, in the very same subject, he scored in the 2nd-5th. The Psychologist says, "You're boy is incredibly smart, but the seizures are creating enormous problems for him. I believe we will see a totally different Aidan when the seizures are eliminated and we retest him."
In the meantime, we are to continue with speech therapy, and get him in occupational therapy. He "doesn't qualify for developmental therapy because he's way too smart." :)
Who needs finger paints when you have an ice cream sandwich?Still waiting on the full, grand, official diagnosis on Jace. Though it has become pretty obvious his condition is not going to improve without therapy. And I do believe the neurologist, at Shriners, that he has Cerebral Palsy.
1 comment:
I am sorry to hear but glad you finally are able to know for sure. What are there plans? How often do you come to Shriners? We should get together, there was no doubt in anyone's mind how smart your children are and how cute they are as well. Hang in there..
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