Three Little Engines: 36 wks tomorrow

Monday, October 12, 2009

36 wks tomorrow

I'm still shocked we've made it this far, and it actually has me pretty scared too. I started early labor on Saturday, but it basically stalled. Then my insulin requirements dropped dramatically again on Sunday. I'm taking hardly any now. Which then prompted yet another ultrasound. He is doing everything in the NSTs and ultrasounds they want to see, so it seems there is no explanation for the things happening that would indicate he's in trouble.

We all have horrible colds, or the flu, can't tell. The hospital is no longer allowing children in unless being admitted as patients, and all pregnant women and babies entering have to wear a mask. They've had a pretty huge flu outbreak, of both the seasonal and swine, so they are pretty freaked. Even have me on Tamiflu (as well as all the hospital employees) because there are no swine flu vaccines available yet, and they forced me to get a regular flu shot.

Go in for my obgyn exam today. Doubt I'll have any new news though. Since my blood pressure is holding, and they keep seeing Damon doing "so well," they are waiting to see how far we can go instead of inducing just yet.

3 comments:

Grandpa Weber said...: We're praying every day that things go well for you, so we're relieved to hear that 36 weeks have gone by.; October 13, 2009 at 11:00 AM
Buzybugs pixie.blogspot.com said...: Oh WOW, big news- Your doing great.. 36 weeks.. YAY! This is so awesome. I continue to pray for you and your family, the swine flu sure has be scared, be careful.. I look forwarding to hear more progress.; October 15, 2009 at 9:39 PM
Erin said...: Just read that Damon has arrived! I am so happy that you are both doing well and that things look good! I am excited to see pictures of your newest little man!; October 18, 2009 at 5:24 PM

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Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.