Medication changes

Yesterday, I told the Neurologist that the Keppra wasn't working. We'd seen no visible improvement once on the full dose, but some pretty annoying behavioral changes. It's hard knowing what is from medication and what is from therapy. Unfortunately it requires a wait and see approach... which I hate. His response was as I'd dreaded. He ordered the horrible Video EEG.

It lasts for 3 days. They will take him off all the medication. Hook him to all the equipment and keep him in a room with video recording. Then do everything they can do induce as many seizures as possible. Things not only like the sleep deprivation already done, but also hunger and "mild" dehydration, and use his sensory issues against him as well. Of course, because it's such a terrible test, it's only done at the hospital, and only at certain hospitals at that. Since Primary Childrens has a huge waiting list now, he is sending us to St. Lukes in Boise.

Then I get this card from Aidan today, that he'd made during his OT session. I was stunned at the huge improvement in his handwriting. His is the dark marker below (copying) the yellow. As I'm weening him off the very medication that it appears has made it possible for him to do this. Not sure what to think or do! Now there is visible improvement. Behavioral issues can be worked with, if there's notable improvement otherwise.