Damon and doctors

So we've had many tests, and I'm wiped out.  

Seriously, I've had my fill of doctors for a lifetime, and yet it's only begun.

(Just getting Damon to this last time was, well...  long story short, the driver didn't show when scheduled and we had to scrounge for money to get daddy out the door with Damon, while sickie me stayed here and drove, while under the influence of a freaking out heart and lungs, Aidan and Jace to therapy.  This is actually a very good example of how this whole sorted thing has gone.)

Damon's episodes are typical seizure episodes.  

An EEG has not backed that up, but the insurance will not pay for another EEG (nor do we want to go through another one) unless it accompanies a sleep study... that I just don't really feel like doing, because I don't think he has sleep apnea, I think it's just plain seizures. :)  I know from experience right in the beginning with Aidan, that a child can totally be having seizures, but it not show on an EEG.  For now, the game plan is to only use therapies as "treatment" for Damon because I'm not seeing them often enough to warrant the serious side effects anti-seizure meds cause.  

To give you a comparison... Aidan untreated or unsuccessfully treated has 30 or more seizures a day... when things got really bad before a medication was found in the beginning, he was having 50 or more in a 24hr period.  It's no wonder my Aidan is so fragile and had such a dramatic regression.  On successful treatment, he still has daily seizures, up to 10, depending on what activities he's chosen.  Damon, on the other hand, right now I'm only seeing about 1 in 3 weeks.  You might say it still should be treated, because seizures cause brain damage.  Well, yes, but the medications cause health problems.  Aidan has so many that he must be treated.  Damon, though suffering with some brain damage, is still making gains that therapy is clearly helping accomplish.  

All that work for a lukewarm conclusion.

If I sound exhausted, it's because I am.  I've had some really scary things going on for me with my health the last several days.  All while the school district keeps calling me with pressure to put both older boys back into their system.  Not good timing on their part... it comes across as bullying, though it isn't meant to be I'm sure.  I do get where they are coming from, and that's part of my problem I think!  I don't just say, "I've made my decision, leave me alone!" As well as juggling all the appts, school, and Aidan being sick.  

One thing is for sure, I'm seriously pooped.

I don't want another doctor appt for the boys for a couple of weeks, please... pretty please!

If Jace has any say, though, I think I'm in for it.  This boy is going to be the death of me, I'm telling you!  While his dad was at church, and I was having a really bad heart/lung episode and laid down, he climbed the bookshelf... and then fell.  His face actually looks better than it did yesterday after he did it.  So I guess I should preface that with, if he doesn't kill himself first.