With Aidan's significant increase in seizures again, we needed to get him back to the neurologist. I had made the appt for Jace with it as well, when he was regressing. Jace's regression had seemed to calm and level out again, but since the appt was already made for both boys, and Aidan certainly needed it still, we took the whole family.
The neurologist was okay with trying medication on Jace if I wanted to, but I chose to leave it for now.
Mostly because I'm really not seeing a ton of daytime seizure activity, and finding a medication that works is difficult... if a dr isn't even sure there are seizures, they are uncomfortable with trying medication after medication. With epilepsy, it will increase over time when untreated. So if Jace actually has epilepsy, we'll eventually see them regularly during the day.
As for Aidan, he wants to try increasing the one medication we can, first. This is the normal approach of taking what is already known to work and bumping it up a bit. We did this with his last regression and it didn't work so we ended up having to add another medication. So here we go with another trial of medication changes. I get so nervous every time, you'd think I'd be calm about it by now, but it always brings nasty side effects and surprises that I hate seeing him go through.
Damon was not part of the appt, but I mention him because I'm seeing more seizures, in fact he had a pretty obvious one Thursday afternoon. It scares me even more than Aidan's do when it's happening, because Damon is still a baby and Aidan's been having them for 3yrs now.
Our trip back from PCMC seemed forever long. Aidan kept asking, "are we there yet?"
We got out of SLC really quickly, it was when we stopped at Tremonton for a potty break, that the sky opened up and we were in a blizzard. People were sliding off the road everywhere, and we had to travel at 40mph. So it took us 6hrs to get home. This after the boys were completely obnoxious for the appt itself, so we are down right weak from exhaustion today!
The neurologist was okay with trying medication on Jace if I wanted to, but I chose to leave it for now.
Mostly because I'm really not seeing a ton of daytime seizure activity, and finding a medication that works is difficult... if a dr isn't even sure there are seizures, they are uncomfortable with trying medication after medication. With epilepsy, it will increase over time when untreated. So if Jace actually has epilepsy, we'll eventually see them regularly during the day.
As for Aidan, he wants to try increasing the one medication we can, first. This is the normal approach of taking what is already known to work and bumping it up a bit. We did this with his last regression and it didn't work so we ended up having to add another medication. So here we go with another trial of medication changes. I get so nervous every time, you'd think I'd be calm about it by now, but it always brings nasty side effects and surprises that I hate seeing him go through.
Damon was not part of the appt, but I mention him because I'm seeing more seizures, in fact he had a pretty obvious one Thursday afternoon. It scares me even more than Aidan's do when it's happening, because Damon is still a baby and Aidan's been having them for 3yrs now.
Our trip back from PCMC seemed forever long. Aidan kept asking, "are we there yet?"
We got out of SLC really quickly, it was when we stopped at Tremonton for a potty break, that the sky opened up and we were in a blizzard. People were sliding off the road everywhere, and we had to travel at 40mph. So it took us 6hrs to get home. This after the boys were completely obnoxious for the appt itself, so we are down right weak from exhaustion today!
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