Three Little Engines: Crazy Jace

Sunday, February 20, 2011

Crazy Jace

Being silly with Jace.

Then totally annoyed with the background.

Jace needs a blackout curtain in his bedroom, but he climbs up in the window and pulls on the curtains which in turn breaks the rod. Obviously I haven't done what I hope will fix the problem yet. Been too busy and tired. So darling shot of Jace, if you can ignore the trashy background!

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Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.