Three Little Engines: Playdough

Friday, March 11, 2011

Playdough

Damon sampling one of the last homemade oreos.

Jace with his playdough hot dog.

And Aidan with his.

They made snowmen, angels, rabbits, trains, and some things I had no clue what they were.

Aidan was completely disgusted with me for not having colors to add. This was not planned, so we did with what we had. He still had fun.

1 comment:

Buzybugs pixie.blogspot.com said...: Damon is so darn cute-; March 26, 2011 at 9:59 PM

Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.