So when the nurse called me back about Aidan's meds she said that his neurologist would probably just want me to wait for another month to give the changes a chance to level out.
I expressed that I felt it had already had that chance, but left it at that knowing she would be asking the neurologist about it.
They called back again today to have me increase it again. He will now be on double his original dose of one of the medications... the very one that causes stomach problems... when he's already got stomach problems before the meds.
Not sure how to feel about it. I know Aidan's seizures are too high and we need to find something that helps bring their frequency down. Everything is getting more difficult for him. And he keeps coming to me to say he loves me. He doesn't realize he just did. Hundreds of times a day, seriously.
It's breaking my heart... what he's making sure he expresses to me is so sweet.
2 comments:
What a kind-hearted soul. Wish I were there to help comfort him...and you.
Lots of love,
Elle
I wish so much I could make it better, there is nothing worse then watching the pain or frustrations of your child. My prayers are with you guys and I am just so sorry, your such a great MOM.
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