Three Little Engines: Baby Damon babbling

Wednesday, March 23, 2011

Baby Damon babbling

Damon is nearly 1 1/2 yrs old.

A few days ago he started making sounds I haven't really heard from him before, so I knew something had connected that wasn't before.

Suddenly this morning, he started babbling! That darling baby talk with the sweet lift to the voice.

My sweet babe. :)

2 comments:

Anonymous said...: Would love to hear his babbling. (=
Love,
Elle; March 23, 2011 at 12:35 PM
Buzybugs pixie.blogspot.com said...: SO seriously CUTE...; March 26, 2011 at 9:56 PM

Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.