Aidan said he got better sleep last night, so at least that's a good sign for the med change.
As we worked on school today, he still had major difficulty processing the entire question when asked. He kept missing blips of it. I've noticed some days he really struggles with this, some days not so much. At this point I really don't know if this is the brain damage, or seizure interruptions. I would think the brain damage would result in a consistent problem rather than being hit and miss... leading me to believe it really is the seizures still. In the mean time I keep sounding like a stuck record myself, with all the showing him how to break questions down into parts over and over, day after day.
Today was Damon's first time with full back to back therapies after my implementing the essential oils.
He did really well. That much at once was still too much for him, but he dealt with it better.
In fact, as I look back at this insane year with both Damon and Jace... and the drs and all of our pleading...
they both are doing amazing and I'm so very grateful we didn't back down.
Damon literally came alive with the Keppra. Now with the calming effects of the oils, he's doing super. Still has bad days, but they are fewer and it can be linked to breakthrough seizures.
Jace improved dramatically with Depakote too. All their therapists reported big improvements.
And here at home, well, I haven't seen nearly as many staring spells, big body jolts, or the crazy total loss of muscle tone.
After what's happened with Aidan, it's really difficult for me to just let go and be thrilled. I can't help but hesitate, bracing for the next jerk back. I guess it's also because I have to fight so hard all the time to get this for them. It's wearing. I've lost the trust I used to feel for these specialists.
The pediatrician is thrilled. He's even thrilled Aidan isn't doing worse.
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