Quite a while ago I noticed some changes, but have had issues for as long as I can remember with certain things. I figured it was just part of our family thing and I had to deal with it.
Fast forward to now...
Several months ago I noticed I could not longer handle white bread, and soon, not even the store bought wheat breads. That's why I perfected my own homemade whole grain recipe. I figured it was all the crappy fillers and preservatives they put in there. Damon is allergic to many preservatives.
As Jace has declined a bit, needing more oxygen and more pain medication for his nerve pain, I've been in and out of the ER and Drs offices with severe pain and symptoms that have frustrated Drs at best. Doubled over, in so much pain they can't touch me without sending me off the bed. Or they just don't dare. They like to get me out of there fast, with a quick explanation, acting like I'm some sort of baby when it comes to pain. Please. I went through 4 high risk pregnancies with having to give myself horrible painful shots multiple times a day, one in particular that left large welts on my belly that eventually covered it, puking my guts out- not simple puking- ask Lincoln I puke so hard it leaves blood blisters on my face, I've been through child birth... multiple times, I had JRA, I've been dealing with untreated and increasing body pain for years, untreated and pretty terrible back pain, I have seizures and migraines that were untreated for years. Don't give me a bad time about pain.
Anyway, after multiple tests including two CT scans (1 of them being very painful) and an upper GI with biopsies, they found Celiac disease.
Now... I'm not sulking about this. I'm grateful I have an answer. I'm grateful I can look back and see the Heavenly Father was helping me prepare for this in ways that will make it not such a financial trial. I was just expressing concern about this very thing, yet He's looking after me. I am however realizing literally everything will have to be changed because this allergy is not an easy one to avoid. For now, they are telling me to stay away from both gluten and dairy. Which takes away a lot of the food I have grown to love. I love cheese... I really do. But I guess if it's making me sick, maybe I don't. We'll see. It's not just food, it's many other products we use daily that I have to change or avoid now. So this is an allergy much harder to avoid than Jace's peanut allergy... that I already thought was difficult because people will not stop bringing peanut butter everything everywhere. :)
When I do get overwhelmed it's because the amount of time it's taking away from Jace. Right when he needs me the most. He's dying. I'm not upset with Heavenly Father. I realize there is some reason, he knows better for allowing it. I still feel guilt for having to take so much time on me with this.
Fast forward to now...
Several months ago I noticed I could not longer handle white bread, and soon, not even the store bought wheat breads. That's why I perfected my own homemade whole grain recipe. I figured it was all the crappy fillers and preservatives they put in there. Damon is allergic to many preservatives.
As Jace has declined a bit, needing more oxygen and more pain medication for his nerve pain, I've been in and out of the ER and Drs offices with severe pain and symptoms that have frustrated Drs at best. Doubled over, in so much pain they can't touch me without sending me off the bed. Or they just don't dare. They like to get me out of there fast, with a quick explanation, acting like I'm some sort of baby when it comes to pain. Please. I went through 4 high risk pregnancies with having to give myself horrible painful shots multiple times a day, one in particular that left large welts on my belly that eventually covered it, puking my guts out- not simple puking- ask Lincoln I puke so hard it leaves blood blisters on my face, I've been through child birth... multiple times, I had JRA, I've been dealing with untreated and increasing body pain for years, untreated and pretty terrible back pain, I have seizures and migraines that were untreated for years. Don't give me a bad time about pain.
Anyway, after multiple tests including two CT scans (1 of them being very painful) and an upper GI with biopsies, they found Celiac disease.
Now... I'm not sulking about this. I'm grateful I have an answer. I'm grateful I can look back and see the Heavenly Father was helping me prepare for this in ways that will make it not such a financial trial. I was just expressing concern about this very thing, yet He's looking after me. I am however realizing literally everything will have to be changed because this allergy is not an easy one to avoid. For now, they are telling me to stay away from both gluten and dairy. Which takes away a lot of the food I have grown to love. I love cheese... I really do. But I guess if it's making me sick, maybe I don't. We'll see. It's not just food, it's many other products we use daily that I have to change or avoid now. So this is an allergy much harder to avoid than Jace's peanut allergy... that I already thought was difficult because people will not stop bringing peanut butter everything everywhere. :)
When I do get overwhelmed it's because the amount of time it's taking away from Jace. Right when he needs me the most. He's dying. I'm not upset with Heavenly Father. I realize there is some reason, he knows better for allowing it. I still feel guilt for having to take so much time on me with this.
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