Results of Aidan's latest EEG

As you can see, Damon's mohawk is in full swing again. When I cut his hair I buzzed it all the same length. His mohawk section of hair clearly grows much faster than the rest. I need to get a photo of the back view, it's pretty cute and shows what I'm talking about. 2 month check tomorrow!
This look is very appropriate, coming from Damon, and with Jace in such close proximity. I'd be nervous too. ;)

Jace totally seeks out the camera now.

This is one of the many trains Aidan has made at therapy. I need to get a photo of the latest... it's painted and quite well.

Frankly, this last EEG was done because I said Aidan was still having seizures, and the neurologist didn't really believe me. "To make sure" was the way he put it. Without the original EEG, he had only taken my word up until then, not valuing the other neurologist's diagnosis. Having "failed" 2 meds and been allergic to 1 more, he didn't want to continue without proof.

Even with the increase in dosage, it showed up on the test.

So, 1 more medication try. He will actually have to take 3 total meds. The 1 he's already on, the 2nd new anti-seizure med to combine, and a 3rd that is supposed to help counteract the bad side effects of the new anti-seizure med. We will be going through flavored syrup like crazy. :)

If the new combination doesn't work, it will be deemed "3 medication failures," which means the next step is a "video EEG" that is basically torture. When I described it to Mom, she was appalled that they'd even use such a test these days, especially on a 4yr old. I personally cried right in front of the doctor, and several times throughout the day. Apparently it must be done to make better educated guesses on what medications to try. I suspect it's got something to do with insurance claiming it must be tried 1st before going to a much better, and more expensive, test. My sweet Aidan, I wish I could do all this for you!!! I would take your place without hesitation.