Sunday, June 20, 2010

No more stubbed toes

I think me, Aidan, and Jacen had it the worst.  Our picnic table didn't fit in this kitchen as well as the other one.  We kept tripping on the corners of the benches that stick out.  Poor Aidan didn't stand a chance, nearly every time he walked by, especially if tired... which is most of the time!  I found a table at DI, for $10. It fit my specifications: right size, legs at true corners, and straight.  We went in search of fabric for a table cloth.  I was thinking something girly, after all it's my kitchen.  Then I spotted the Thomas fabric, with tracks.  The only reason Jace isn't in the photo is because we hadn't let him in the room yet.  They both, well even Damon seems to too, love it.  Now Aidan is calling it, "My Thomas table."  Hmmm.  So much for it being my kitchen.
We took the picnic table outside... for a real picnic table.

Damon's neurologist is, fortunately, just as eager as I am to figure out what is causing all of Damon's tremors, and delays.  Seizures still haven't been ruled out either.  He's ordered even more genetic and metabolic testing, along with an extended video eeg like Aidan had at St Luke's.  This means an inpatient hospital stay that could last 3+ days.  And he wants it done now.  In fact he didn't want me to leave.  But I wasn't prepared and he knew that.  So, I've got to get it arranged and done no later than the 28th.

Meanwhile all of the testing done for Jace for the GI thing, came back normal. Haha, it's a joke right?  Chronic diarrhea for no apparent reason.  I think she had said the next step would be the scope, but I wouldn't bet my life on that memory.  We'll see.  The allergy panel labeled his peanut allergy as "severe."  "You knew that, right?" she asked. :)

No comments: