Three Little Engines: Aidan's Graveside Service

Monday, November 24, 2014

Aidan's Graveside Service

Little Butte Cemetery in Annis.

Pallbearers were my brothers Matt and Steve, and Lincoln's father and brother Gary.

Our sweet neighbors and Lexi helping with Jace and Damon.

Placing the flowers.

Jace had to get in on the whole mic thing.

The boys were so overheated...

Precious Damon prays nearly every night that Aidan will return, walking, with Jesus Christ.

One last goodbye before the vault.

1 comment:

gbuthman said...: Such as story left in pictures. You have shared so much with us. The boys love their older brother and they know he is in an amazing wonderful place!; November 24, 2014 at 1:50 PM

Okay, here's the thing:

For those who don't know already...

My oldest, Aidan, was diagnosed with a severe form of Epilepsy called Lennox-Gastaut Syndrome that is not treatable by the time he was 5yrs old. Then Jacen, with mild Cerebral Palsy w/seizure disorder, and Damon with Epilepsy. Later, after extensive testing, specialists said we are dealing with an untreatable neuro-degenerative genetic disorder that all three boys have. Genome sequencing results are still pending for mitochondrial forms that all testing and history points directly to. Heartbreakingly, Aidan passed away September 14, 2014.

All 3 have had varying degrees of developmental delays and regressions, but the same symptoms and in the same cycle. They are just at different stages of the disorder. The genome testing will hopefully provide an answer to the specific genetic markers causing all this so we can maybe, just maybe, make them a little more comfortable as they pass away. Jacen and Damon have now been diagnosed with LGS as well. And Jace is on Hospice. This is my journal.